Joining a support group like the GBS Association of NSW can be super beneficial for several reasons:

Community and Connection
You get to meet people who are going through similar experiences, which can make you feel less alone and more understood.

Shared Knowledge
You can learn a lot from others who have been through similar situations.
They can offer tips, advice, and insights that you might not find elsewhere.

Emotional Support
Having a group of people who understand what you're going through can provide emotional support and encouragement during tough times.

Access to Resources
Support groups often have access to various resources, like educational materials, workshops, and expert talks that can be really helpful.

Advocacy and Awareness
Being part of a group can give you a platform to help raise awareness and advocate for more research and better treatment options.

Social Opportunities
It's also a great way to make new friends and participate in social activities, which can be a nice break from the daily routine.

Overall, it's about being part of a community that gets it and can provide support in many different ways! Membership costs only $20 per year, includes a quarterly RECOVERY Newsletter and monthly “Virtual Coffee Catch-ups” via Zoom.

The National Health and Medical Research Council (NHMRC) has announced a grant for the research into the treatment of CIDP.

The research team will be headed by Professor Matthew Kiernan (pictured).

Have you or someone you care for used an Immunoglobulin Product?

 The key conditions we are interested in are:

• Chronic inflammatory demyelinating polyneuropathy (CIDP)
• -       Myasthenia gravis
• Other neurological conditions receiving immunoglobulin treatments.

NPS MedicineWise is looking for people or carers with the above conditions to attend a focus group. The aim of the focus group is to help us understand what types of information, tools and resources are helpful for people with these conditions.

 We are looking for people from diverse backgrounds, all ages, both new Ig users and experienced users

 We are looking for people to participate in video / telephone conference and to share their experience of Ig treatments

 Both current and former (in the past 3 years) Ig users of intravenous and sub-cutaneous are welcome.

 Those who take part will be compensated for their time.

If you would like to take part, please contact Lia Mahony This email address is being protected from spambots. You need JavaScript enabled to view it. 02 8202 7105

COVID-19 UPDATE

As the news and reaction to the COVID-19 virus changes daily, as you would understand, your association is not able to provide the latest news and advice. However, we can advise members where to go to continue to receive the latest updates rather than follow the story as covered by the media, for daily updates we suggest you visit the NSW Health https://www.health.nsw.gov.au/Infectious/diseases/Pages/coronavirus.aspx.

I can recommend reading a Blog article "Investing in the NDIS" by Jordon Steele-John. It is a thought provoking article re the social reforms of the NDIS.